原产地英雄开启与一种令人衰弱的疾病的斗争

2020-11-19 20:05

State of Origin hero opens up on his shock diagnosis with a debilitating disease at age 39 that left him unable to butter bread or open doors 8w0世界播

原产地英雄在39岁时被诊断出患有一种令人衰弱的疾病,导致他无法在面包上涂黄油,也无法开门。8w0世界播


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Rugby league great Carl Webb has revealed he is fighting motor neurone disease but is tackling the life-threatening condition head-on. 8w0世界播

橄榄球联盟伟大的卡尔·韦伯透露,他正在与运动神经元疾病作斗争,但正在正面应对这种危及生命的疾病。8w0世界播


The 39-year-old former NRL star was diagnosed with MND earlier this year, leaving him struggling to complete basic tasks after his barnstorming football career. 8w0世界播

这位39岁的前NRL球星在今年早些时候被诊断出患有MND,这让他在经历了艰难的足球生涯后,难以完成基本的任务。8w0世界播


'Oh it's everything, opening car doors, buttering bread, trying to do buttons up on your little kids uniform,' he told A Current Affair. 8w0世界播

他在接受A Current Affair采访时说:“哦,这是一切,打开车门,在面包上涂黄油,试着扣上你的小孩制服上的纽扣。”8w0世界播


'Anything that you can imagine is challenging now and it's getting more challenging.' 8w0世界播

他说,现在你能想象到的任何事情都是具有挑战性的,而且越来越具有挑战性。8w0世界播


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Queensland State of Origin legend Carl Webb (pictured after scoring a try in State of Origin II in June 2006) is fighting Motor Neurone Disease 8w0世界播

昆士兰州发源地传奇人物卡尔·韦伯(2006年6月在发源地II比赛中得分后)正在与运动神经元疾病作斗争8w0世界播


Webb was one of Australia's toughest footballers who played State of Origin for Queensland and represented the Indigenous All Stars in his 187-game career. 8w0世界播

韦伯是澳大利亚最强硬的足球运动员之一,他曾为昆士兰州效力,并在他187场比赛的职业生涯中代表土著全明星队。8w0世界播


But on the other side of his playing career his body has started failing him, with the debilitating illness attacking him from the inside. 8w0世界播

但在他职业生涯的另一边,他的身体已经开始让他疲惫不堪,这种令人衰弱的疾病从内部袭击了他。8w0世界播


MND causes muscle weakness by attacking nerve cells making it difficult to breathe and move. 8w0世界播

MND通过攻击神经细胞导致肌肉无力,导致呼吸和活动困难。8w0世界播


Webb was working as a miner when he was diagnosed with the disease and began doing research on the ailment. 8w0世界播

当韦伯被诊断出患有这种疾病时,他是一名矿工,并开始研究这种疾病。8w0世界播


The disease has no cure and the only medications available only slow down the effects of the sickness. 8w0世界播

这种疾病无法治愈,唯一可用的药物只能减缓疾病的影响。8w0世界播


'All of that was really confronting and it still is confronting,' Webb said. 'I'm still quite capable at the moment and independent however I'm under no illusions as to what's to come in the future.' 8w0世界播

韦伯说,所有这些都是真正需要面对的,现在仍然是需要面对的。“目前我仍然很有能力,也很独立,但我对未来的事情并不抱有幻想。”8w0世界播


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The harrowing illness has left the 39-year-old (pictured) struggling to complete basic tasks 8w0世界播

这场令人痛苦的疾病让这位39岁的老人(如图)难以完成基本任务8w0世界播


After being diagnosed, Webb moved into disability housing in Brisbane. 8w0世界播

确诊后,韦伯搬进了布里斯班的残疾人收容所。8w0世界播


He has good days and bad days and said losing his strength is having the worst impact on him. 8w0世界播

他有好的时候,也有不好的日子,他说失去力量对他的影响是最糟糕的。8w0世界播


Webb's eldest son is aware of his father's condition, and though his three younger children don't understand the specifics, they know their dad is sick. 8w0世界播

韦伯的大儿子知道他父亲的病情,虽然他的三个小孩子不了解细节,但他们知道他们的父亲生病了。8w0世界播


The former powerful forward said he is not about to roll over and is working to make life easier for other sufferers of MND. 8w0世界播

这位前强势前锋表示,他不会翻身,他正在努力让其他MND患者的生活变得更轻松。8w0世界播


He launched the Carl Webb Foundation which raises money for people battling MND, offering $2,000 grants for things like modifications to bathrooms and cars. 8w0世界播

他创办了卡尔·韦伯基金会(Carl Webb Foundation),为抗击MND的人们筹集资金,提供2000美元赠款,用于改装卫生间和汽车等。8w0世界播


'Sure it is a terrible condition however if I can make something positive of it, through awareness and raising a little money then I'm happy with that,' Webb said. 8w0世界播

韦伯说:“当然,这是一种糟糕的状况,但如果我能通过提高意识和筹集一点钱,让它变得积极起来,我就会很高兴。”8w0世界播


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Webb (pictured at Suncorp Stadium with his four children) said fighting the illness is confronting but he is settling in for a tough brawl 8w0世界播

韦伯(与他的四个孩子在Suncorp体育场的合影)说,抗击疾病是面临的,但他已经适应了一场激烈的斗殴8w0世界播

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