在你亲近的人或你自己身上,你注意到阿尔茨海默氏症的最初迹象是什么? Joseph Fabian 做出了回答

2020-10-14 09:28

What are the initial signs of Alzheimer's Disease that you noticed in people close to you or in yourself? Uqi世界播

在你亲近的人或你自己身上,你注意到阿尔茨海默氏症的最初迹象是什么?Uqi世界播


Answered by: Joseph Fabian,My father, and aunt died from it Uqi世界播

回答:约瑟夫·法比安,我的父亲和姑姑死于此病Uqi世界播


I am an only child, a son. Like others have said, you don't really understand until it happens to a loved one. My father started showing signs 6 years before he passed away. My mom took care of him as he started the downhill journey. My father always kept a daily journal, something he did starting as a teenager, little things like writing down getting gas, the cost, then calculating MPG and cost per mile after figuring it out in his head. Little things during the day. He always would go back and reread the journal each week. Uqi世界播

我是独生子,是个儿子。就像其他人说的那样,直到亲人发生这种事,你才能真正理解。我父亲在去世前6年就开始出现征兆了。当他开始下山之旅时,我妈妈照顾他。我父亲总是每天记日记,这是他从十几岁开始就做的事情,一些小事情,比如加油,费用,然后在脑子里算出来后,计算出每英里的最低油耗和每英里的成本。白天的小事。他总是每周回去重读这本日记。Uqi世界播


About 4 years into the disease, my mother tripped in the house and broke her leg, and because of complications, she was hospitalized. It was February, I took over his care, and the bills for the house. He had a 1 year 24/7 home care plan, so since I lived 4 hours away, I had someone with him. My mother started having other complications, and was put in intensive care. She was in and out of the ICU for 5 weeks before her heart failed. I did what you do, had a funeral and took my dad who had a hard time walking, home. That day he wrote in his journal, Mom Died !!!! But that night the 3 of us, home care, my dad and I watched TV in silence. Uqi世界播

患病大约4年后,我母亲在家里绊倒,摔断了腿,由于并发症,她被送进了医院。那是2月份,我接手了他的照顾,还有房子的账单。他有一个为期一年的全天候家庭护理计划,所以自从我住在离他4小时车程的地方,我就有人陪着他。我母亲开始出现其他并发症,并被送进重症监护病房。在她心脏衰竭之前,她在重症监护室进进出出了5个星期。我做了你做的事,举行了葬礼,把走路困难的爸爸送回了家。那天他在日记中写道,妈妈去世了!但是那天晚上,我们三个人,在家照看孩子,爸爸和我默默地看电视。Uqi世界播


The next morning he was having breakfast, and seemed OK. He went to the TV room and started watching the morning shows. All of a sudden we heard a scream, and sobbing. He opened his journal and read Mom Died !!!! He was inconsolable. But he started to change and stopped crying after about 20 minutes. He seemed OK. Later that day, the same thing happened. He had forgotten his journal, found it and read Mom Died !!!! again. This went on 2 more times that day. Obvious he had lost short term memory. Uqi世界播

第二天早上,他正在吃早餐,看起来还好。他走进电视室,开始看早间节目。突然,我们听到了尖叫声和呜咽声。他打开日记,看到妈妈去世了!他伤心欲绝。但他开始改变,大约20分钟后就不哭了。他看起来还好。当天晚些时候,同样的事情也发生了。他忘记了他的日记,找到它,看到妈妈去世了!再来一次。那天又发生了两次这样的事情。很明显,他已经失去了短期记忆。Uqi世界播


I tried taking the journal away, but then another emotion of anger and rage at me and the worker that we stole it. I did not know what was worse, the rage, or reliving mom's death. We ended up putting it where we could point it out across the room from him, but when he asked for it, we always had to leave the room with the promise we would give it to him when we got back. We didn't, he forgot most of the time. Yet there were times when we were out of the room where he got up found it, and read Mom Died !!!!. The stress on me was horrific, I hated that I could do nothing to console him, I hated the fact that he kept reliving her death, all this while I was still coping with her death, and now their house, finances, and I was still working. Uqi世界播

我试着把日记拿走,但随后我和那个被我们偷了的员工又产生了一种愤怒和愤怒的情绪。我不知道哪个更糟糕,是愤怒,还是重温母亲的死亡。我们最终把它放在房间对面可以指给他看的地方,但当他要的时候,我们总是带着我们回来时会给他的承诺离开房间。我们没有,他大部分时间都忘了。然而,有几次,我们走出他起床的房间,发现了它,并读到了妈妈去世了!。我承受的压力是可怕的,我讨厌我不能做任何事情来安慰他,我讨厌他不断地重温她的死亡,所有这一切都是在我还在处理她的死亡,现在他们的房子,财务,而我还在工作的时候。Uqi世界播


After a year, the long term care policy ran out. He had forgotten that Mom died, always saying she was at the beauty parlor having her hair done, or at the grocery store. He forgot his journal, so he was not reliving her death every day. I had to find him an Alzheimer's residence. I couldn't afford the cost for home care plus all the expenses of 2 homes, his and mine. I found one where I turned over his Social Security and applied for state aid, which they received. Uqi世界播

一年后,长期护理政策用完了。他忘了妈妈死了,总是说她在美容院做头发,或者在杂货店。他忘了写日记,所以他不会每天都重温她的死。我得给他找个阿尔茨海默氏症住处。我负担不起家庭护理的费用,外加他和我的两个家的所有费用。我找到了一个,在那里我交了他的社保,并申请了州政府的援助,他们收到了。Uqi世界播


I took him there on my birthday that year, and showed him his room, and where he would live and he got mad accusing me of abandoning him. The scene was terrible, I ended up in the lobby sobbing uncontrollably. He had a difficult time adjusting, did not want to participate in their activities, reluctant to go to the meals. After almost 3 months things got better, but I was starting a new job on the other side of the country (he was in Florida, I was moving to Seattle). I remember taking him out to lunch, buying new clothes, electric shaver etc and when we got back to the place, I asked him to wait in the lobby. I went to the bathroom and when I got back 3 minutes later, he had no recollection I was there and greeted me like he hadn't seen me in a year. His short term memory was now down to minutes. The staff told me he was OK, he laughed and watched TV with the others. But now I am in Seattle, so it was still a stress. Uqi世界播

那年我生日那天带他去了那里,带他去看了他的房间和他要住的地方,他气疯了,指责我抛弃了他。场面太可怕了,我最后在大堂失声痛哭。他有一段时间很难适应,不想参加他们的活动,不愿意去吃饭。将近3个月后,情况有所好转,但我在美国的另一边开始了一份新工作(他在佛罗里达,我要搬到西雅图)。我记得带他出去吃午饭,买新衣服,电动剃须刀等等,当我们回到那个地方时,我让他在大堂等着。我去了洗手间,3分钟后我回来时,他完全不记得我在那儿,跟我打招呼就像一年没见过我一样。他的短期记忆现在只剩下几分钟了。工作人员告诉我他没事,他笑着和其他人一起看电视。但是现在我在西雅图,所以这仍然是一种压力。Uqi世界播


11 months later he passed away. I buried him with mom. Uqi世界播

11个月后,他去世了。我把他和妈妈埋在一起。Uqi世界播


One final note, the stress is never ending when taking care of an Alzheimer's patent. After my mom died I went through their finances, and realized that she was also starting to show signs of dementia, bills not paid, late fees etc. Uqi世界播

最后要注意的是,在处理阿尔茨海默氏症专利时,压力永远不会结束。我母亲去世后,我检查了他们的财务状况,发现她也开始出现痴呆症的迹象,账单没有支付,滞纳金等等。Uqi世界播


My mother’s younger sister eventually ended up with it, and she had it 10 years before she passed. Uqi世界播

我母亲的妹妹最终得到了它,她在去世前10年得到了它。Uqi世界播


Three years ago I went to a neurologist to baseline myself to see where I stood since it was on both sides of my family. When my parents came down with it, they were 20 years older than me, but I wanted to see where I stood. Uqi世界播

三年前,我去看了一位神经科医生,以确定我的立场,因为我的家庭两边都有这种情况。当我的父母患上这种病时,他们比我大20岁,但我想看看我的处境。Uqi世界播


I was OK, and I just had myself checked again. OK again. The neurologist was upbeat that several clinical trials are getting close to a medication(s) that can stop the progression, and appear to remove the plaques. He showed me brain scans of someone who was in the trial before then after and the scans were remarkable. Uqi世界播

我很好,我刚刚又检查了一下。好的,再来一次。这位神经科医生乐观地认为,几项临床试验正在接近一种可以阻止病情发展的药物,而且似乎可以移除斑块。他给我看了一个在那之前参与试验的人的脑部扫描,扫描结果非常出色。Uqi世界播


So we are close to turning the tide on this devastating disease. Uqi世界播

因此,我们即将扭转这一毁灭性疾病的局面。Uqi世界播


My best to everyone reading this. I hope these medications are as successful as they seem, and that they are available soon. Uqi世界播

向所有读到这篇文章的人致以最美好的祝愿。我希望这些药物像它们看起来那样成功,并且很快就能上市。Uqi世界播

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